{"id":238162,"date":"2026-01-30T16:37:36","date_gmt":"2026-01-30T15:37:36","guid":{"rendered":"https:\/\/www.lorena-hoormann.at\/?p=238162"},"modified":"2026-05-05T14:50:05","modified_gmt":"2026-05-05T12:50:05","slug":"diagnosing-dementia-society","status":"publish","type":"post","link":"https:\/\/www.lorena-hoormann.at\/en\/diagnose-demenz-gesellschaft\/","title":{"rendered":"Dementia diagnosis: why it affects us all"},"content":{"rendered":"What actually happens after a dementia diagnosis? This question was at the center of the online conference \u201eDiagnosis Dementia \u2013 There's a lot to be done...\u201c, which took place in January <a href=\"https:\/\/sorgenetz.at\/projekte\/demenznetzwerk-oesterreich\/\">Dementia Network Austria<\/a> was was carried out. This question hits a nerve that extends far beyond the medical system. Because a dementia diagnosis is not a neutral moment. It marks a transition in life. A transition that requires orientation, relationships, and reliable support. Or, as was aptly stated in the post-conference review: <em>\u201eA dementia diagnosis is not a single medical act, but the beginning of a sensitive transition.\u201c<\/em>\r\n<h2>1. Not about us \u2013 but with us<\/h2>\r\nA central idea of the conference was that far too often around the topic of dementia <em>over<\/em> the affected individuals, relatives, and loved ones are spoken to, and too rarely with them. That this must change has also <a href=\"https:\/\/www.derstandard.at\/story\/3000000305192\/diagnose-demenz-nicht-ueber-uns-sondern-mit-uns-reden\">Article by Marianne Buchegger in <em>The Standard<\/em> picked up: \u201eDiagnosis Dementia: Don't talk about us without us\u201c<\/a> (worth reading and highly relevant to the conference discussions). The online conference picked up exactly here: Voices of people with dementia, their partners and relatives, and experts from medicine, psychology, nursing, counseling, self-help, and science were placed side-by-side on an equal footing. Not to present quick solutions, but to make visible where structures support and where they (still) fail.\r\n<h2>2. Why I am committed here<\/h2>\r\nI've been a member of the club for many years <a href=\"https:\/\/www.sorgenetz.at\">Safety net<\/a>. Originally, I joined the project as an external evaluator <a href=\"https:\/\/www.achtsamer.at\">\u201eMindful 8\u201c<\/a> joined \u2013 and I stayed because the approach convinced me: to listen, to take seriously, to think ahead together. My own commitment \u2013 not just regarding dementia \u2013 is closely linked to questions of equal opportunity and equal dignity. As a future psychosocial counselor (LSB), I repeatedly experience how much support depends on,\r\n<ul>\r\n \t<li>where someone lives,<\/li>\r\n \t<li>how many resources are available,<\/li>\r\n \t<li>what options someone has<\/li>\r\n \t<li>and whether suitable accompaniment can even be found.<\/li>\r\n<\/ul>\r\nOr, as the retrospective says: <em>\u201eOverwhelm of patients and their loved ones is not an individual failure, but a systemic effect of fragmented structures.\u201c <\/em>This perspective is important to me because it moves away from assigning blame and towards societal responsibility.\r\n<h2>3. Think socially, not individually<\/h2>\r\nDementia never affects individuals alone. It affects relationships, families, neighborhoods \u2013 and ultimately all of us. We all get older. And many of us will eventually face limited mobility, altered sensory perception, or increased dependency. Perhaps you are familiar with these perspective-shifting formats: walks with a restricted field of vision, with earplugs, or with walkers. They vividly demonstrate how much our environment, language, and structures determine whether participation remains possible or not. That is precisely why dementia is not purely a medical issue.<em>\u201eDementia is not just a medical task, but a societal one.\u201c<\/em>\r\n<h2>4. Claims intended to remain in effect<\/h2>\r\nMany contributions made it clear that dementia doesn't start suddenly but announces itself quietly \u2013 and that the real break is often not the diagnosis itself, but what comes afterward. The aftermath, in which people search for orientation and find forms instead. In which relationships are supposed to sustain while structures are missing. The summary puts it succinctly: \u201eGood support doesn't begin only after the diagnosis but at the moment a suspicion is expressed.\u201c This thought ran through my whole day. It reminds us that support is an attitude \u2013 and systems become effective when they don't pass people on but walk with them.\n\nClear demands have emerged from the joint exchange at the conference: for better orientation starting from the diagnosis, for reliable peri- and post-diagnostic support, for the recognition of those affected and their relatives as co-sufferers, for destigmatization, and for structural security instead of ad-hoc solutions. These demands will flow as input into the further development of the dementia strategy. They are not isolated opinions but a distillation of lived experience, professional expertise, and social responsibility.\r\n<h2>Thank you for this space<\/h2>\r\nWhat this work carries are people. In the safety net, for me, these include the association's founder and managing director.<a href=\"https:\/\/www.xn--wrdeweise-q9a.at\/\"> Daniela Martos<\/a>, <a href=\"https:\/\/pflegewissenschaft.univie.ac.at\/ueber-uns\/personen\/gert-dressel\/\">Gert Dressel<\/a>, <a href=\"https:\/\/ageandcaregraz.at\/de\/\">Klaus Wegleitner,<\/a>\u00a0<a href=\"https:\/\/personen.hcw.ac.at\/patrick-schuchter\/\">Patrick Schuchter<\/a>, <a href=\"https:\/\/pflegewissenschaft.univie.ac.at\/ueber-uns\/personen\/katharina-heimerl\/\">Katharina Heimerl<\/a>, Christoph H\u00f6bart, Valerie Pechhacker-Prei\u00df, and Ilona Wenger \u2013 people I hold in high regard, both professionally and personally. You can find the detailed recap of the online conference, all materials, and further content <a href=\"https:\/\/sorgenetz.at\/projekte\/demenznetzwerk-oesterreich\/\">here<\/a>. If this topic resonates with you, I invite you to keep reading, to reflect, and perhaps even to change your perspective. Because a society is not shown by how it deals with strength, but by how it creates opportunities for and with vulnerability. For everyone.","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":238204,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-238162","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-gesellschaft-wandel"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Diagnose Demenz: Warum uns das alle angeht<\/title>\n<meta name=\"description\" content=\"Ein pers\u00f6nlicher R\u00fcckblick auf die Online-Tagung \u201eDiagnose Demenz: Da gibt es viel zu tun\u201c und warum Begleitung eine gesellschaftliche Aufgabe ist.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lorena-hoormann.at\/en\/diagnosing-dementia-society\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Diagnose Demenz: Warum uns das alle angeht\" \/>\n<meta property=\"og:description\" content=\"Ein pers\u00f6nlicher R\u00fcckblick auf die Online-Tagung \u201eDiagnose Demenz: Da gibt es viel zu tun\u201c und warum Begleitung eine gesellschaftliche Aufgabe ist.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lorena-hoormann.at\/en\/diagnosing-dementia-society\/\" \/>\n<meta property=\"og:site_name\" content=\"Lorena Hoormann\" \/>\n<meta property=\"article:published_time\" content=\"2026-01-30T15:37:36+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-05-05T12:50:05+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lorena-hoormann.at\/wp-content\/uploads\/2026\/01\/1.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1400\" \/>\n\t<meta property=\"og:image:height\" content=\"788\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Lorena Hoormann\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Lorena Hoormann\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"5 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/www.lorena-hoormann.at\\\/diagnose-demenz-gesellschaft\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/www.lorena-hoormann.at\\\/diagnose-demenz-gesellschaft\\\/\"},\"author\":{\"name\":\"Lorena Hoormann\",\"@id\":\"https:\\\/\\\/www.lorena-hoormann.at\\\/#\\\/schema\\\/person\\\/f0673419bc80b285662c1c817149f9f1\"},\"headline\":\"Diagnose Demenz: Warum uns das alle angeht\",\"datePublished\":\"2026-01-30T15:37:36+00:00\",\"dateModified\":\"2026-05-05T12:50:05+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/www.lorena-hoormann.at\\\/diagnose-demenz-gesellschaft\\\/\"},\"wordCount\":756,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\\\/\\\/www.lorena-hoormann.at\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/www.lorena-hoormann.at\\\/diagnose-demenz-gesellschaft\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/www.lorena-hoormann.at\\\/wp-content\\\/uploads\\\/2026\\\/01\\\/1.png\",\"articleSection\":[\"Gesellschaft &amp; 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